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[Palliative sedation : Development and consensus of a German language documentation template]
C Klein1, C Wittmann2, K N Wendt2
1Palliativmedizinische Abteilung in der Anästhesiologischen Klinik, Universitätsklinikum Erlangen, Friedrich-Alexander-Universität Erlangen-Nürnberg, Krankenhausstraße 12, 91054, Erlangen, Deutschland. carsten.klein@uk-erlangen.de.
This study developed a German documentation template for palliative sedation (PS) to ensure ethical and medically sound end-of-life care. The template, based on the EAPC framework, addresses key aspects like indications and symptom management, facilitating consistent application.
Area of Science:
- Palliative Care
- Anesthesiology
- Medical Documentation
Background:
- Palliative sedation (PS) is a therapeutic option for intractable suffering at the end of life.
- Anesthesiologists are increasingly involved in end-of-life sedation decisions across various care settings.
- While international guidelines exist, Germany lacks official PS guidelines, highlighting the need for standardized protocols.
Purpose of the Study:
- To develop a German language template for the preparation, application, documentation, and evaluation of palliative sedation.
- To align the template with current international frameworks, particularly the European Association for Palliative Care (EAPC) framework on PS.
- To create an empirically based, multiprofessional consensus document for PS practices in Germany.
Main Methods:
- A draft template was created using the EAPC framework and existing institutional templates.
- An online Delphi survey involving 136 palliative care professionals assessed the draft's relevance, wording, and feasibility.
- An expert panel refined the template based on Delphi survey results, achieving consensus above 75% for all items.
Main Results:
- The Delphi process and expert panel led to significant template revisions, clarifying indications and the documentation of vital parameters.
- A consensus was reached on documenting sedation levels and symptom burden, with a flexible approach to vital signs monitoring.
- All 16 documentation template items achieved high consensus (78-100%) for relevance, clarity, and feasibility.
Conclusions:
- An empirically based, multiprofessional consensus documentation template for palliative sedation is now available in German.
- The template emphasizes core elements like indications and decision-making, while acknowledging challenges in vital signs documentation, especially in outpatient and hospice settings.
- This resource supports the medically and ethically sound use of PS and aids future research, with the template accessible online.
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