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Conference Scene: Direct-to-consumer genetic testing in the age of personalized medicine
1Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Kapucijnenvoer 35, BOX 7001, 3000 Leuven, Belgium. pascal.borry@med.kuleuven.be.
Abstract:
This article provides a meeting report from the 5th International DNA Sampling Conference, 'The Age of Personal Genomics', which took place in Banff (Canada) on 16-18 September 2009. Most of the contributions that focused on offering genetic tests directly to consumers are presented in this report. In particular, we summarize presentations on various topics: inaccurate or misleading claims that are being made by direct-to-consumer genetic testing companies; the role of medical professionals in this regard; the motivations of users to purchase personal genome services or to use genetic tests; genetic testing in minors by direct-to-consumer companies; consent forms and privacy statements of these companies; the regulatory oversight of these activities; and prospects of the evolution of this market.
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