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Genetic Information, the Principle of Rescue, and Special Obligations
The Hastings Center Report
|May 29, 2018
Summary
Patients may have a duty to warn family of genetic risks, but this obligation might stem from special familial ties rather than solely the principle of rescue. Further consideration of these special obligations is warranted.
Area of Science:
- Bioethics
- Genetics
- Medical Law
Background:
- Madison Kilbride's "Genetic Privacy, Disease Prevention, and the Principle of Rescue" posits a duty to warn genetic relatives of adverse findings.
- This duty, according to Kilbride, arises from the principle of rescue, not special familial obligations.
Purpose of the Study:
- To evaluate the applicability of the principle of rescue in establishing a duty to warn genetic relatives.
- To explore the potential role of special obligations in creating a duty to warn.
Main Methods:
- Philosophical analysis of ethical principles.
- Ethical argumentation and critique of existing theories.
Main Results:
- The principle of rescue may not sufficiently ground the duty to warn in all envisaged genetic scenarios.
- Kilbride's argument may underemphasize the significance of special obligations between family members.
Conclusions:
- The ethical basis for warning genetic relatives about actionable genetic findings requires further nuanced examination.
- Special obligations could play a more substantial role in establishing a duty to warn than previously considered.
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