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Patients' Main Concerns About Having a Sibling Stem Cell Donor - A Grounded Theory Study
Annika M Kisch1,2, Anna Forsberg3
1Department of Haematology, Skåne University hospital, S-221 85 Lund, Sweden.
The Open Nursing Journal
|May 31, 2018
Summary
Patients undergoing stem cell transplants with a sibling donor focus on "recompensation" by investing in, compensating, and celebrating their sibling. This involves managing guilt and pressure during recovery.
Area of Science:
- Hematology
- Transplantation Medicine
- Psychosocial Oncology
Background:
- Limited understanding of patient perspectives regarding sibling donors in allogeneic hematopoietic stem cell transplantation (HSCT).
- Need for insight into stem cell recipients' concerns to provide patient-centered nursing care.
Purpose of the Study:
- To explore patients' primary concerns about having a sibling as a stem cell donor.
- To investigate how recipients manage these concerns from pre-transplant to one year post-transplant.
Main Methods:
- Prospective interviews with ten adult sibling stem cell recipients over one year.
- Grounded Theory methodology applied to analyze interview data.
Main Results:
- A core category, 'Recompensation,' emerged, encompassing 'Invest,' 'Compensate,' and 'Celebrate.'
- Recompensation involves a lasting effort by the recipient to compensate the sibling donor for their contribution.
- Recipients experience strain managing the need to reward, protect, and maintain the relationship with their sibling donor while coping with illness and recovery.
Conclusions:
- The primary concern for HSCT recipients in the first year post-transplant is to recompense their sibling donor.
- This recompensation process, while having positive aspects, can also create pressure and feelings of guilt for the recipient.