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Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
Supporting Optimal Neurodevelopmental Outcomes in Infants and Children With Congenital Heart Disease
1Jennifer K. Peterson is a PhD candidate at University of California, Irvine, Sue & Bill Gross School of Nursing, as well as the Children's Heart Institute Clinical Program Director at Miller Children's and Women's Hospital in Long Beach, California. jkpeter1@uci.edu.
Insights
Improved survival in children with congenital heart disease (CHD) increases the risk of developmental delays. Integrating developmentally supportive nursing care alongside critical interventions is vital for better outcomes in these high-risk infants and children.
Area of Science:
- Pediatric critical care
- Developmental pediatrics
- Congenital heart disease (CHD) outcomes
Background:
- Improved survival rates in infants and children with CHD have highlighted the increased prevalence of developmental delays.
- Risk factors for these delays may be intrinsic, necessitating supportive care strategies.
- High-technology interventions in pediatric cardiac intensive care units (CICUs) must be complemented by developmentally supportive nursing care.
Purpose of the Study:
- To review developmentally supportive interventions for infants and children with CHD.
- To identify strategies for implementing developmental care in CICUs.
- To emphasize the importance of developmental support for improving outcomes and promoting family-centered care.
Main Methods:
- Review of existing literature on developmentally supportive interventions.
- Identification of key interventions including massage, kangaroo care, and pain management.
- Discussion of change implementation strategies for integrating developmental care into CICU settings.
Main Results:
- Several developmentally supportive interventions are available, including massage, kangaroo care, cue-based feeding, and procedural preparation.
- Effective pain and anxiety management are crucial components of developmental support.
- Implementation requires a multi-level approach with support from all healthcare professionals.
Conclusions:
- Developmentally supportive nursing interventions are essential for infants and children with CHD at risk for developmental delay.
- Integrating these interventions into CICUs can improve neurodevelopmental outcomes.
- Promoting family-centered care through developmental support is a key goal.
Abstract:
Improved survival has led to increased recognition of developmental delays in infants and children with congenital heart disease. Risk factors for developmental delays in congenital heart disease survivors may not be modifiable; therefore, it is important that lifesaving, high-technology critical care interventions be combined with nursing interventions that are also developmentally supportive. Implementing developmental care in a pediatric cardiac intensive care unit requires change implementation strategies and widespread support from all levels of health care professionals. This manuscript reviews developmentally supportive interventions such as massage, developmentally supportive positioning, kangaroo care, cue-based feeding, effective pain/anxiety management, and procedural preparation and identifies strategies to implement developmentally supportive interventions in the care of infants and children with congenital heart disease. Improving developmental support for these infants and children at high risk for developmental delay may improve their outcomes and help promote family-centered care.
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