Newborn biliary atresia screening with the stool colour card: a questionnaire survey of parents

Morgane Borgeat1, Simona Korff1, Barbara E Wildhaber2

  • 1Department of Pediatrics, University Hospitals of Geneva, Geneva, Switzerland.

Insights

Parents overwhelmingly find the stool colour card (SCC) helpful for screening biliary atresia. While a small minority experience unease, the SCC is easy to use and reassures most parents, supporting its widespread implementation.

Area of Science:

  • Pediatric Gastroenterology
  • Neonatal Screening
  • Public Health

Background:

  • Biliary atresia screening is crucial for improving infant outcomes.
  • The stool colour card (SCC) is a simple tool for early detection.
  • Physician reluctance exists due to potential parental anxiety.

Purpose of the Study:

  • To assess parental reactions to the stool colour card (SCC) screening method.
  • To determine if the SCC evokes parental stress.
  • To evaluate the SCC's impact on parental reassurance and emotions.

Main Methods:

  • A semistructured questionnaire was administered to parents of healthy children.
  • Parents were surveyed regarding their reactions to receiving and using the SCC.
  • Data from returned questionnaires were analyzed to evaluate parental responses.

Main Results:

  • 100% of parents found the SCC helpful, simple, and easy to use.
  • 60% of parents felt reassured upon receiving the SCC; only 5% reported worry.
  • 84% of parents experienced positive or neutral emotions during SCC use; 82% had neutral discussions with pediatricians.

Conclusions:

  • The vast majority of parents appreciate and value the stool colour card (SCC).
  • The SCC causes uneasiness in only a small minority of parents.
  • Results support the regular distribution of the SCC in various infant clinics to improve early diagnosis.
Abstract

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