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A Review Of Referral Patterns For Sagittal Synostosis In Ireland: 2008-2013

M J Berney1, A McGillivary1, J Caird1

  • 1Temple Street Children's University Hospital, Temple Street North, Dublin 1.

Irish Medical Journal
|June 6, 2018
PubMed

Insights

Early referral for sagittal synostosis (SS) is crucial. Most infants were referred before six months, but late referrals led to complex pathways, highlighting the need for improved clinician awareness of early intervention for this common craniosynostosis.

Area of Science:

  • Pediatric Surgery
  • Craniofacial Surgery
  • Neurosurgery

Background:

  • Sagittal synostosis (SS) is the most frequent type of craniosynostosis.
  • Treatment for SS in Ireland is centralized at the National Paediatric Craniofacial Centre (NPCC).

Purpose of the Study:

  • To investigate the relationship between referral patterns and the age of surgical intervention for non-syndromic sagittal synostosis.
  • To identify factors contributing to delayed referrals and their impact on patient management.

Main Methods:

  • Retrospective analysis of 81 patients with non-syndromic SS referred to the NPCC over a 5-year period (April 2008 - April 2013).
  • Data collected included patient demographics and referral information.

Main Results:

  • 60% of patients (74%) were referred before six months of age.
  • Late referrals (26%) were associated with more complex referral pathways and unnecessary investigations.
  • Neonatologists achieved 100% early referral, compared to 71% by pediatricians and 64% by GPs.

Conclusions:

  • Emphasis on early referral for sagittal synostosis is essential.
  • Improving clinician knowledge regarding SS and the benefits of early intervention can reduce late referrals.
  • Streamlining referral processes may decrease patient-related delays and improve surgical outcomes.

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