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    Clinical registries are vital for national performance measurement but face data collection cost barriers. The National Quality Registry Network (NQRN) initiative, Registries on FHIR, aims to improve data interoperability and reduce these costs.

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    Area of Science:

    • Health Informatics
    • Clinical Data Management
    • Healthcare Quality Improvement

    Background:

    • National performance measurement requires clinical data tracking multidisciplinary teams across care episodes.
    • Clinical registries offer structured, specific data across specialties, ideal for measurement and analysis.
    • Current registry models are hindered by the high cost of data abstraction from EHRs and other systems.

    Purpose of the Study:

    • To address barriers in achieving semantic interoperability between clinical registries and source data systems.
    • To reduce the cost associated with data collection and mapping for registry participation.
    • To improve the utility of registry data for national performance measurement.

    Main Methods:

    • The National Quality Registry Network (NQRN) launched the Registries on FHIR initiative.
    • Conducted an information gathering campaign in 2017 to understand registry needs for interoperability.
    • Focused on identifying key areas and methods for improving data exchange between registries and source systems.

    Main Results:

    • Identified significant barriers related to the cost of data collection and abstraction from EHRs.
    • Highlighted the need for improved semantic interoperability to streamline data integration into registries.
    • Gathered insights into specific areas where registries require enhanced data exchange capabilities.

    Conclusions:

    • The Registries on FHIR initiative aims to lower interoperability barriers for clinical registries.
    • Improving data interoperability is crucial for efficient national performance measurement.
    • Addressing data collection costs through initiatives like Registries on FHIR can enhance registry sustainability and data utility.