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Although unseen, chronic pain is real-A phenomenological study
Tapio Ojala1, Arja Häkkinen1,2, Jaro Karppinen3,4
1Department of Health Sciences, University of Jyväskylä, Jyväskylä, Finland.
Chronic pain patients often face disbelief from healthcare providers when no physical cause is found, leading to feelings of rejection and worsening mental health. This highlights the gap between recommended biopsychosocial approaches and actual clinical practice.
Area of Science:
- Medical Sociology
- Psychology
- Pain Management
Background:
- Psychosocial factors are crucial in chronic pain, yet clinical practice often prioritizes identifying physical causes.
- Pain without a distinct pathology is frequently dismissed as imaginary, impacting patient care.
- The study addresses the patient experience of 'invisible' chronic pain.
Purpose of the Study:
- To explore the patient perspective on the invisibility of chronic pain.
- To understand how a lack of identifiable pathology affects the validation of chronic pain experiences.
Main Methods:
- Qualitative study involving 34 participants with chronic pain (mean age 48, 19 female).
- 21 participants experienced pain for over five years; most had degenerative spinal pain.
- Interviews analyzed using Giorgi's four-phase phenomenological method.
Main Results:
- Participants reported chronic pain often being disbelieved by healthcare providers due to absent pathology.
- Statements from providers and family often involved speculation, underrating, and denial of pain.
- Patients experienced rejection from healthcare and social security systems, exacerbating mental health issues.
Conclusions:
- Chronic pain without clear pathology is often deemed imaginary in healthcare settings.
- Despite recommendations for a biopsychosocial model, chronic pain is still treated as a symptom of disease.
- The holistic, biopsychosocial approach is underutilized in clinical practice, suggesting a persistent Cartesian mind-body dualism.
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