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Integrated breathlessness services for people with chronic conditions
Claudia Bausewein1, Philipp Schumacher, Anna Bolzani
1Department of Palliative Medicine, Munich University Hospital, Ludwig-Maximilians-Universitaet Muenchen, München, Germany.
Current Opinion in Supportive and Palliative Care
|June 22, 2018
Summary
Breathlessness services offer crucial support for patients with advanced chronic conditions. Studies show these services significantly reduce breathlessness distress and improve patient mastery and severity, highlighting their value.
Area of Science:
- Palliative Care
- Respiratory Medicine
- Quality of Life Research
Background:
- Breathlessness is a common and distressing symptom in advanced chronic diseases.
- Effective management often requires a multi-component approach beyond pharmacological treatments.
- Breathlessness services aim to provide specialized support for patients and their carers.
Purpose of the Study:
- To review recent studies evaluating the effectiveness of breathlessness services.
- To understand the impact of these services on patients with advanced chronic conditions.
- To assess the components and patient experiences within breathlessness services.
Main Methods:
- Systematic review of recent studies, including randomized controlled trials (RCTs).
- Analysis of quantitative outcomes such as breathlessness distress, mastery, and severity.
- Inclusion of qualitative data to explore patient experiences and perceived benefits.
Main Results:
- Four RCTs demonstrated significant positive effects on breathlessness distress, mastery, or severity.
- One RCT showed non-significant quantitative results but positive qualitative patient feedback.
- Patients highly valued the caring, holistic, respectful, and integrated approaches of the services.
Conclusions:
- Breathlessness services, combining non-pharmacological and sometimes pharmacological interventions, are effective.
- These services significantly improve patient outcomes and experiences.
- Increased provision of breathlessness services is recommended due to high and rising prevalence.
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