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Potentials and Challenges of the Health Data Cooperative Model.

Ilse van Roessel1, Matthias Reumann2,3, Angela Brand1,2

  • 1Faculty of Health Medicine and Life Sciences (FHML), Maastricht University, Maastricht, the Netherlands.

Public Health Genomics
|June 25, 2018
PubMed
Summary

The health data cooperative (HDC) model offers a decentralized approach to accessing health data, enabling citizen empowerment and healthcare cost reduction. However, challenges related to privacy, data security, and commercial interests require further research before widespread implementation.

Keywords:
Big dataElectronic patient recordHealth data cooperativeMobile health appsP4 medicine

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Area of Science:

  • Health Informatics
  • Data Science
  • Cooperative Models

Background:

  • Abundant health data is siloed due to decentralized storage and privacy laws.
  • The health data cooperative (HDC) model aims to unlock this data for societal benefit.
  • This study analyzes the HDC model's potential and challenges.

Purpose of the Study:

  • To analyze the health data cooperative (HDC) model.
  • To identify the potentials of the HDC model.
  • To investigate the challenges associated with the HDC model.

Main Methods:

  • Review of existing studies on the HDC model.
  • Analysis of core principles, platform components, and identified potentials.
  • Examination of challenges including privacy, security, and commercial interests.

Main Results:

  • The HDC model is a citizen-centered, not-for-profit health data bank utilizing cloud storage and open-source principles.
  • Potentials include healthcare digitization, citizen and patient empowerment, knowledge benefit, and cost reduction.
  • Challenges encompass privacy, data security, citizen restraint, and commercial interests.

Conclusions:

  • The HDC model presents significant potential for healthcare transformation.
  • Addressing challenges in privacy, security, and commercial interests is crucial for successful implementation.
  • Further research with larger, diverse groups and additional pilots are recommended.