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Ethics in genetic counselling.

Angus J Clarke1, Carina Wallgren-Pettersson2,3

  • 1Institute of Medical Genetics, Division of Cancer & Genetics, School of Medicine, Cardiff University, Heath Park, Cardiff, Wales, CF14 4XN, UK. clarkeaj@cardiff.ac.uk.

Journal of Community Genetics
|June 28, 2018
PubMed
Summary
This summary is machine-generated.

Medical genetics presents complex ethical challenges involving family and social contexts. Advances in genomic technology exacerbate these issues, requiring careful communication and ethical consideration for patients and their families.

Keywords:
Additional findingsConsentDisabilityDisclosureEthicsGenetic informationIncidental findingsNon-directivenessPredictive genetic testingPrenatal diagnosisScreeningVariants of uncertain significance

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Area of Science:

  • Medical Genetics
  • Bioethics

Background:

  • Ethical dilemmas in medical genetics frequently involve patient families and social contexts.
  • Tensions arise between the interests of patients, professionals, and even future individuals or embryos.

Purpose of the Study:

  • To explore the complex ethical issues in medical genetics.
  • To highlight the impact of new genomic technologies on existing ethical challenges.

Main Methods:

  • Analysis of ethical issues in genetic counseling and testing.
  • Consideration of patient-professional and inter-family perspectives.
  • Examination of challenges posed by genome-wide investigations and incidental findings.

Main Results:

  • Ethical problems are amplified by complex genomic data, incidental findings, and variants of uncertain significance.
  • Genomic investigation reports are often provisional, posing ongoing challenges.
  • Disagreements can occur regarding information disclosure and genetic testing appropriateness.

Conclusions:

  • Medical genetics requires sensitive communication and ethical clarity to navigate complex patient and family dynamics.
  • Ongoing advancements in genetic technology necessitate continuous adaptation of ethical frameworks.
  • Persistent ethical challenges are anticipated in the field of genomic medicine.