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Guidelines for Elective Pediatric Fiberoptic Intubation
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Self-reported needs after pediatric stroke.

Anne L Gordon1, Loan Nguyen2, Anna Panton3

  • 1Evelina London Children's Hospital, Guy's & St Thomas' NHS Foundation Trust, UK; King's College London, UK.

European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society
|July 2, 2018
PubMed
Summary
This summary is machine-generated.

Pediatric stroke survivors and their families report significant unmet needs in health and care, impacting school, leisure, and social life. Addressing these needs is crucial for improving well-being post-stroke.

Keywords:
CaregiversChildHealth care utilizationRehabilitationStroke

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Area of Science:

  • Pediatric Neurology
  • Rehabilitation Medicine
  • Child Health Services

Background:

  • Pediatric stroke significantly impacts children and families long-term.
  • Understanding self-reported needs is vital for child-centered interventions.
  • Current knowledge on pediatric stroke patient and family needs is limited.

Purpose of the Study:

  • To identify and quantify the met and unmet needs of pediatric stroke patients and their families.
  • To compare the needs of pediatric stroke survivors with those of adult stroke survivors.

Main Methods:

  • A questionnaire adapted from an adult stroke study was used.
  • Participants included parents of children (0-18 years) and young people (12-18 years) with ischemic or hemorrhagic stroke.
  • Data collected from three UK tertiary pediatric stroke clinics.

Main Results:

  • Over two-thirds of participants reported at least one unmet need.
  • More than half experienced difficulties with school activities, and over a third with leisure and social relationships.
  • Higher neurological impairment correlated with a greater number of needs.

Conclusions:

  • Pediatric stroke survivors and their families experience substantial unmet needs across various health domains.
  • A needs-based strategy is essential for optimizing health and well-being after pediatric stroke.
  • Findings highlight the necessity for tailored support systems for pediatric stroke.