Creation of a childhood glaucoma registry database

Area of Science:

• Ophthalmology
• Pediatric Medicine
• Biostatistics

Background:

• Childhood glaucoma presents unique challenges in data collection and analysis.
• Establishing a centralized registry is crucial for understanding disease patterns and progression.
• Current methods may lack the capacity for multicenter collaboration and comprehensive data capture.

Purpose of the Study:

• To establish a digital database for registering patients diagnosed with childhood glaucoma.
• To facilitate multicenter data collection and storage for a comprehensive patient registry.
• To create a tool for identifying risk factors, estimating prevalence, and recruiting for future studies.

Main Methods:

• An online form was developed using the Google Forms platform for patient registration.
• A pilot study was conducted to validate the Google Forms platform for data collection.
• The registry questionnaire was designed to capture social, gestational, family, and clinical data, including treatment information.

Main Results:

• The Google Forms platform enables online data entry and cloud storage, facilitating multicenter data aggregation.
• The database allows for the acquisition and analysis of epidemiological and clinical data in childhood glaucoma.
• The comprehensive form captures detailed patient information, aiding in pattern detection and treatment evaluation.

Conclusions:

• Google Forms serves as an effective tool for collecting and analyzing statistical data in a multicenter setting.
• The developed online questionnaire facilitates patient registration and information analysis for childhood glaucoma.
• A multicenter online database can significantly aid in identifying risk factors and evaluating treatment outcomes for pediatric glaucoma.