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Ethics Review of Projects (ERoP): A Conceptual Framework
Don Flaming1, Marie Pinard2, Debbie Mallett3
1Education consultant at the College and Association of Registered Nurses of Alberta. He was previously the manager of A pRoject Ethics Community Consensus Initiative (ARECCI), a program supported by Alberta Innovates that focuses on the assessment and mitigation of ethical issues in projects that are not research. He has been involved in ethics review of both research and non-research for 10 years. He can be contacted at College and Association of Registered Nurses of Alberta, 11620-168 St., Edmonton, AB, T5M 4A6; tel.: 780-732-7153, ext. 573;
Ethical risks in non-research knowledge-generating projects (NRKGPs) like program evaluations are often overlooked. This study offers a framework to help organizations build comprehensive ethics review processes for these initiatives.
Area of Science:
- Health Services Research
- Bioethics
- Organizational Ethics
Background:
- Ethical risks are standard in research but often unaddressed in program evaluations and quality improvement.
- Non-research knowledge-generating projects (NRKGPs) carry similar ethical considerations.
- Existing ethics review processes may not adequately cover NRKGPs.
Purpose of the Study:
- To present a conceptual framework for developing comprehensive ethics review processes for NRKGPs.
- To provide actionable strategies for implementing ethics review in progressive domains.
- To illustrate the framework's application in real-world health organizations.
Main Methods:
- Development of a conceptual framework for NRKGP ethics review.
- Identification of strategies for progressive implementation across three domains.
- Case study analysis of two health organizations with existing NRKGP ethics review processes.
Main Results:
- The conceptual framework provides a structured approach to NRKGP ethics review.
- Strategies are adaptable for implementation across different organizational contexts.
- Case studies demonstrate practical application and highlight lessons learned.
Conclusions:
- Organizations can enhance ethical oversight for NRKGPs using the proposed framework.
- Comprehensive ethics review is crucial for responsible knowledge generation beyond traditional research.
- Adopting structured ethics review processes mitigates risks in program evaluations and quality improvement.
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