PedsQL 3.2 Diabetes Module for Children, Adolescents, and Young Adults: Reliability and Validity in Type 1 Diabetes

James W Varni1, Alan M Delamater2, Korey K Hood3

  • 1Department of Pediatrics, College of Medicine, and Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, TX jvarni@tamu.edu.

Diabetes Care
|August 1, 2018
PubMed

Insights

The updated Pediatric Quality of Life Inventory (PedsQL) 3.2 Diabetes Module shows excellent reliability and validity for assessing type 1 diabetes symptoms and management in young patients.

Area of Science:

  • Pediatric Endocrinology
  • Health Outcomes Research
  • Psychometrics

Background:

  • Type 1 diabetes impacts children and adolescents, necessitating reliable tools to measure quality of life.
  • Existing quality of life measures require updates to reflect current understanding and patient needs.

Purpose of the Study:

  • To evaluate the measurement properties of the revised Pediatric Quality of Life Inventory (PedsQL) 3.2 Diabetes Module.
  • To assess the reliability and validity of the PedsQL 3.2 Diabetes Module in a diverse pediatric population with type 1 diabetes.

Main Methods:

  • A national field test involving 656 families of patients aged 2-25 years with type 1 diabetes.
  • Utilized the PedsQL 3.2 Diabetes Module and PedsQL Generic Core Scales.
  • Factor analysis was used to derive summary scores for diabetes symptoms and management.

Main Results:

  • The Diabetes Symptoms and Diabetes Management Summary Scores demonstrated excellent reliability (Cronbach's alpha 0.88-0.90).
  • Construct validity was supported by significant correlations with the Generic Core Scales (r = 0.43-0.67).
  • HbA1c levels showed significant correlations with symptom and management scores (r = -0.21 to -0.29).

Conclusions:

  • The PedsQL 3.2 Diabetes Module exhibits excellent measurement properties.
  • This module can serve as a standardized patient-reported outcome for diabetes symptoms and management.
  • It is suitable for use in clinical research, trials, and practice for pediatric type 1 diabetes populations.
Abstract

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