Reviewing progress in public involvement in NIHR research: developing and implementing a new vision for the future
Sophie Staniszewska1, Simon Denegri2, Rachel Matthews3
1Warwick Research in Nursing, Division of Health Sciences, Warwick Medical School, Division of Health Sciences, University of Warwick, Coventry, UK.
BMJ Open
|August 1, 2018
Summary
Public involvement in research is growing internationally. This review identified barriers and enablers, offering a vision for 2025 to strengthen public engagement in health research.
Area of Science:
- Health Research Systems
- Public Involvement in Research
- Patient and Public Involvement (PPI)
Background:
- Public involvement in research is recognized as a significant international social movement.
- Growing institutional commitment and evidence highlight the expansion of PPI activities.
- The National Institute for Health Research (NIHR) is a leading global funder reviewing its PPI approach.
Purpose of the Study:
- To review progress in public involvement (PPI) within NIHR research.
- To identify barriers and enablers influencing PPI effectiveness.
- To develop a vision for public involvement in research by 2025 and assess its international influence.
Main Methods:
- The 'Breaking Boundaries Review' utilized an expert advisory panel and diverse data sources.
- Methods included online surveys, international evidence sessions, workshops, and analysis of existing systematic reviews.
- Thematic analysis, managed with NVivo, informed the report's vision, mission, and recommendations.
Main Results:
- Identified key barriers and enablers to PPI progress, including attitudes, resources, infrastructure, training, support, and leadership.
- Highlighted the critical role of evidence in underpinning PPI practice and continuous improvement.
- Co-production emerged as a central concept for enhancing future public involvement in research.
Conclusions:
- Significant progress in PPI has been made, but consolidation and acceleration of effective practices are needed.
- The NIHR is implementing the Review's outcomes, demonstrating global leadership in PPI assessment.
- The findings and recommendations offer transferable insights for other research organizations, countries, and individuals.
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