Palliative care for patients with a substance use disorder and multiple problems: a study protocol.
Anne Ebenau1, Boukje Dijkstra2, Marianne Stal-Klapwijk3
1Salvation Army, Central Netherlands, Zandvoortweg 211; 3741 BE, Baarn, the Netherlands. Anne.Ebenau@radboudumc.nl.
BMC Palliative Care
|August 5, 2018
Summary
Palliative care for patients with substance use disorders is under-recognized. This study explores their needs and organizational challenges to improve end-of-life care for this vulnerable population.
Area of Science:
- Palliative Care Research
- Substance Use Disorders
- Healthcare Organization
Background:
- Palliative care needs for patients with substance use disorders (SUDs) and their proxies are often overlooked.
- The organization and professional responsibilities within palliative care for SUD patients are frequently unclear.
- Patient and proxy perspectives on palliative care are underrepresented in existing literature.
Purpose of the Study:
- To explore the organization of palliative care for patients with SUDs in the Netherlands.
- To identify challenges and needs from the perspective of patients, proxies, and healthcare professionals.
- To formulate recommendations for improving palliative care for this population.
Main Methods:
- Qualitative study employing semi-structured interviews with patients (n=10-15), proxies (n=5-10), and healthcare professionals/experts (n=24-40).
- Thematic analysis of all (group) interviews.
- Strengths, Weaknesses, Opportunities, and Threats (SWOT) analysis applied to group interview data.
Main Results:
- This section is not available in the provided abstract.
Conclusions:
- Every individual deserves optimal end-of-life care and a dignified death.
- This research will illuminate the specific needs and challenges faced by patients with SUDs, their proxies, and healthcare professionals in palliative care settings.
- Findings will contribute valuable knowledge to enhance palliative care for individuals with substance use disorders.
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