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Using Retinal Imaging to Study Dementia
Published on: November 6, 2017
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Preparedness of representatives for people with dementia in a self-directed program
Ellen K Mahoney1, Lori Simon-Rusinowitz2, Dawn M Loughlin2
1a William F. Connell School of Nursing, Boston College , Chestnut Hill , MA , USA.
Journal of Gerontological Social Work
|August 14, 2018
Summary
Representatives caring for persons with dementia in participant-directed (PD) care programs generally feel prepared. However, preparedness varies by task, highlighting needs for tailored support and dementia care literacy.
Area of Science:
- Gerontology
- Healthcare Management
- Social Work
Background:
- Representatives play a crucial role in participant-directed (PD) dementia care, acting as decision-making partners.
- Effective support for these representatives is vital for successful PD implementation and participant well-being.
Purpose of the Study:
- To assess the self-rated preparedness of representatives for key dimensions of their role in PD dementia care.
- To identify specific areas of strength, variation, and challenges in the representative role.
Main Methods:
- A telephone survey was conducted with 30 representatives of persons with dementia in a PD program.
- Participants self-rated their preparedness across expert-endorsed role dimensions.
Main Results:
- Overall preparedness scores ranged from 'pretty well' to 'very well' prepared.
- Significant variation in preparedness was observed across different role dimensions and individuals.
- Key areas with notable variation included managing unpredictable situations, assessing decisional capacity, anticipating needs, ensuring safety, supporting care teams, and negotiation.
Conclusions:
- Representatives demonstrate a generally good level of preparedness but face specific challenges.
- Dementia care literacy and a strong support system are crucial for reducing stress.
- Findings can inform the development of targeted interventions and resources to enhance representative support in PD dementia care.
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