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Published on: September 19, 2019
'Place bonding' in children's hospice care: a qualitative study
Helena Dunbar1, Bernie Carter2, Jayne Brown3
1Leicester School of Nursing and Midwifery, De Montfort University, Leicester, UK.
Parents seeking children's hospice care found that feeling a sense of belonging and "home" facilitated acceptance. This "place bonding" theory helps understand parental engagement with hospice services.
Area of Science:
- Pediatric Palliative Care
- Family-Centered Care
- Qualitative Research
Background:
- Limited understanding of parental experiences with children's hospices.
- Need to explore factors influencing service access and uptake.
Purpose of the Study:
- Explore parents' hospice perspectives and experiences.
- Identify barriers and facilitators to hospice access.
- Determine desired hospice care characteristics.
Main Methods:
- Two-phase qualitative study using constructivist grounded theory.
- Phase 1: Focus groups with parents using hospice services (n=24).
- Phase 2: Interviews with non-users (n=7) and past users (n=7).
Main Results:
- Developed a grounded theory of 'place bonding'.
- Illustrates parents' cognitive journey with life-limiting conditions and hospice care.
- Sense of belonging and feeling 'at home' eased acceptance of care.
Conclusions:
- Place bonding theory enhances understanding of parental engagement with children's hospices.
- Feeling 'at home' makes accepting care for a child with a life-limiting condition more acceptable.
- Offers hospices a new perspective on parental relationships and service access.
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