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Area of Science:

  • Wound Care
  • Quality of Life Research
  • Health Psychology

Background:

  • Assessing health-related quality of life (QoL) in patients with chronic wounds is crucial for effective treatment.
  • Patient-reported outcomes are the gold standard, but proxy reports may be necessary when patients cannot self-report.

Purpose of the Study:

  • To evaluate the agreement between patient and proxy (relative) reports using the Wound-quality of life (QoL) questionnaire.
  • To determine the reliability of proxy-reported QoL data in individuals with chronic wounds.

Main Methods:

  • Patients with chronic wounds and their proxies were recruited from German nursing services.
  • The Wound-QoL questionnaire was administered to both patients and proxies.
  • Statistical analysis included intraclass correlation coefficients and weighted Cohen's Kappa coefficients.

Main Results:

  • Proxies generally reported lower health-related QoL compared to patients.
  • Agreement was moderate at the individual item level.
  • Agreement was excellent at the scale level for the Wound-QoL.

Conclusions:

  • Proxy reports on the Wound-QoL questionnaire offer valuable insights when patient self-reporting is not feasible.
  • While proxy data can be supplementary, patient self-assessment is the preferred method for evaluating health-related QoL in chronic wound patients.
  • Careful interpretation of proxy-reported data is advised due to potential discrepancies.