Burdens Beyond Biology for Sick Newborn Infants and Their Families
1Department of Neonatology, Beth Israel Deaconess Medical Center, 330 Brookline Avenue, Boston, MA 02215, USA; Division of Newborn Medicine, Harvard Medical School, Boston, 300 Longwood Avenue, Boston, MA, 02115, USA.
Insights
Neonatology must expand beyond biological outcomes to embrace "Slow Medicine." This approach considers the broader family and societal impacts, including financial and emotional stress, of neonatal intensive care.
Area of Science:
- Neonatology
- Medical Ethics
- Sociology of Medicine
Background:
- Current neonatology outcome assessment primarily focuses on infant biological health.
- There is a need to broaden the scope beyond the infant (proband) and biological metrics.
- The technical advancements in neonatal intensive care warrant a re-evaluation of their societal integration.
Abstract:
To date, outcomes in neonatology have focused mainly on the biological outcomes of the babies under our care. In this article, we argue that we must move beyond this proband and biological bias, towards a "Slow Medicine" that recognizes the distinction between the remarkable technical capabilities of the modern medical world and how those intersect with our society, and its values, more broadly. Practically speaking, this involves consideration of the impacts of neonatal intensive care and its sequelae on families, as well as non-biological outcomes such as finances and stress. Implementing this Slow Medicine does not mean that neonatologists must forego effective therapy or the improved mortality and morbidity it has brought, but rather that we adopt a committed and compassionate view of medicine, in which we engage outside the neonatal intensive care unit to address the nonbiological suffering of our patients and their equally vulnerable families.
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