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Conducting a Multilingual Study Researching Traumatised Refugees Utilizing a Patient-Reported Outcome System
Michael Storck1, Gundula Christians2, Birgit Möller2
1Institute of Medical Informatics, University of Muenster, Muenster, Germany.
This study introduces multilingual electronic patient-reported outcome systems (ePROs) to screen asylum-seeking children for mental health issues. These systems help overcome language barriers, improving healthcare access for vulnerable refugee minors.
Area of Science:
- Public Health
- Mental Health
- Digital Health
Background:
- Over 300,000 asylum-seeking children arrived in Europe in 2015, facing high risks of trauma.
- Diverse linguistic backgrounds of refugees present significant communication challenges in healthcare settings.
- Multilingual electronic patient-reported outcome systems (ePROs) offer a solution to bridge language barriers in medical data collection.
Purpose of the Study:
- To screen refugee minors for potential mental health issues using a multilingual ePRO system.
- To evaluate the feasibility and utility of ePROs in a cross-cultural, multilingual refugee population.
- To adapt and implement a system for collecting health data from vulnerable, non-native speaking children.
Main Methods:
- A two-phase study utilizing a multilingual ePRO system for mental health screening.
- Administering questionnaires with established psychometric properties and cross-cultural applicability to refugee minors.
- Collecting data through electronic surveys, with German and Arabic being the most requested languages.
Main Results:
- Successfully initiated a study screening refugee minors for mental health concerns.
- Collected data from 75 minors and 21 relatives, demonstrating participant engagement.
- Identified German and Arabic as primary languages for the electronic survey, reflecting participant needs.
Conclusions:
- Multilingual ePRO systems are a viable tool for overcoming language barriers in refugee healthcare.
- The developed translation process and ePRO system have potential for re-use in similar international studies.
- This approach facilitates essential mental health screening for vulnerable asylum-seeking children.
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