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Updated: Feb 5, 2026

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
Published on: January 12, 2019
Starting from scratch: implementing outcome measurement in clinical practice.
Claudia Bausewein1, Eva Schildmann2, Johannes Rosenbruch2
1Department of Palliative Medicine, Munich University Hospital, LMU Munich, Munich, Germany. claudia.bausewein@med.uni-muenchen.de.
Implementing routine outcome measurement in palliative care is feasible with a structured process. This approach helps monitor patients, assess interventions, and improve care, despite requiring time and attention.
Area of Science:
- Palliative Care
- Health Services Research
- Clinical Practice Improvement
Background:
- Outcome measurement is crucial in palliative care for research and clinical practice.
- Routine assessments can monitor patient status, evaluate interventions, and address patient priorities.
- Implementing routine outcome measurement into clinical practice presents challenges.
Purpose of the Study:
- To describe the process of implementing routine outcome measurement into daily clinical work.
- To detail the steps involved in integrating outcome measurement in a university palliative care unit.
Main Methods:
- Followed recommendations by Antunes for implementation.
- Steps included: selection of outcomes (symptoms, concerns, function, carer burden), selection of measures (IPOS, phase of illness, AKPS), education, designating a coordinator, and defining application periodicity.
- Utilized team meetings, retreats, and role-playing for education.
Main Results:
- Implementation of routine outcome measurement in clinical settings is feasible using a structured process.
- The process is time-consuming and requires ongoing attention.
- The benefits of routine outcome measurement outweigh the implementation challenges.
Conclusions:
- A structured approach makes routine outcome measurement feasible in palliative care.
- Continuous attention and resources are necessary for successful implementation.
- Routine outcome measurement is a valuable undertaking in palliative care settings.
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