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Qualitative Analysis03:46

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Defining Empowerment and Supporting Engagement Using Patient Views From the Citizen Health Information Portal:

Tracie Risling1, Juan Martinez1, Jeremy Young1

  • 1College of Nursing, University of Saskatchewan, Saskatoon, SK, Canada.

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Summary

Digital health tools like patient portals can empower individuals by fostering a sense of being heard and enabling them to move forward in their care. This research explores patient perspectives on digital health empowerment and engagement.

Keywords:
digital healthelectronic health recordpatient empowermentpatient engagementpatient portal

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Area of Science:

  • Digital Health
  • Health Informatics
  • Patient Empowerment

Background:

  • Technology in healthcare offers new avenues for patient engagement and empowerment.
  • The link between digital health solutions, patient empowerment, and health outcomes requires further investigation.

Purpose of the Study:

  • To explore patient views on how electronic health record portal access influences their sense of empowerment.
  • To understand the patient experience within a digital health context.

Main Methods:

  • Qualitative methodology using interpretive description with participants in a patient portal trial.
  • Assessment of empowerment considered patient demographics, self-reported health, and technology adaptation.

Main Results:

  • Patient empowerment in digital health was categorized as 'Being Heard' and 'Moving Forward'.
  • 'Being Heard' includes 'Knowing More' and 'Seeing What They See'.
  • 'Moving Forward' includes 'Owning Future Steps' and 'Promoting Future Care', highlighting interconnectedness with engagement and activation.

Conclusions:

  • Patient voice is crucial for evolving the concept of patient empowerment in digital health.
  • Relational and informational elements are key for operationalizing and measuring patient empowerment and engagement.
  • Further research is needed to accurately measure patient empowerment and engagement in digital health.