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Disease-related information requirements in patients with Crohn's disease
1Department of Gastroenterology, Ruijin Hospital, School of Medicine, Shanghai Jiaotong University, Shanghai, People's Republic of China, jimmyzj64@medmail.com.cn.
Insights
Patients with Crohn's disease (CD) have high information needs across various aspects of their condition. Doctor guidance, brochures, and videos are preferred information sources for managing CD effectively.
Area of Science:
- Gastroenterology
- Patient Education
- Health Information Seeking Behavior
Background:
- Crohn's disease (CD) management requires comprehensive patient understanding.
- Information needs vary among CD patients based on demographics and disease stage.
- Effective patient education is crucial for improving health outcomes in chronic conditions.
Purpose of the Study:
- To investigate the specific information demands of patients with Crohn's disease.
- To identify demographic factors influencing disease-related information needs.
- To assess patient preferences for various information sources.
Main Methods:
- A study involving 159 Crohn's disease patients was conducted.
- A modified information demands questionnaire assessed needs in general knowledge, fertility, treatment, and daily management.
- Demographic data and acceptance of information sources were analyzed.
Main Results:
- Overall information demands for Crohn's disease were high.
- Fertility information needs were higher in female, younger patients, and those planning children.
- Younger patients had greater clinical treatment information needs; rural patients and those with shorter disease duration sought more life management information.
- Doctor-mediated guidance, brochures, and videos were the most accepted information sources.
Conclusions:
- Crohn's disease patients exhibit substantial information demands across multiple domains.
- Demographic characteristics significantly correlate with specific information needs.
- Tailored educational programs utilizing preferred sources like doctor guidance, brochures, and videos can enhance patient well-being.
Aim:
To explore the demands for different disease-related information and the acceptance of various information sources in patients with Crohn's disease (CD).
Methods:
This study included 159 patients with CD and was conducted from April 2017 to December 2017 in our hospital. We obtained the demographic characteristics of the patients and used the modified information demands questionnaire to assess patients' disease information demands, covering 4 aspects which include general knowledge, fertility, clinical treatment, and daily management. Then, we analyzed the factors associated with the information demand. In addition, we studied the patients' acceptance of different information sources.
Results:
The disease-related information demands of patients with CD are generally high. Female patients, young patients, and patients with plans to have children have significantly higher information demands concerning fertility. The information demands in clinical treatment are higher in young patients. Patients living in the countryside and patients with a short disease duration have high information demands concerning life management. The patients' acceptance of different information sources is variable. Doctor-mediated guidance, brochures, and videos are the top 3 patient choices for information sources.
Conclusion:
Patients' information demands concerning many aspects of CD are generally high. Certain demands are significantly associated with the demographic characteristics of the patients. Doctor-mediated guidance, brochures, and videos are the top 3 patient choices for information sources. Therefore, corresponding education programs can be developed to improve the physical and psychological health of CD patients in the future.