Attitudes toward prenatal screening for chromosomal abnormalities: A focus group study.

Area of Science:

• Reproductive Health
• Health Services Research
• Patient Decision-Making

Background:

• Discrete choice experiments (DCEs) are established for patient preference research.
• Limited literature exists on using qualitative methods for DCE design.

Purpose of the Study:

• To present a case study on qualitative research for developing DCE attributes.
• Focuses on attributes for prenatal screening and diagnosis.

Main Methods:

• Recruitment via posters and social media.
• Conducted four in-depth, semi-structured focus groups.
• Included pregnant women and their partners/support people in Metro Vancouver.

Main Results:

• Identified four key decisions in prenatal screening and diagnosis.
• Important factors include timing, information, cost, invasiveness, and potential harm.
• Preferences varied based on screening vs. diagnostic tests.

Conclusions:

• Findings inform DCE attribute development for prenatal testing.
• Preferences influenced by perceived ability to care for a child with genetic anomalies, risk factors, parity, views on termination, and insurance coverage.
• Mental well-being and stress reduction are significant considerations for participants.