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Can patient and carers' experiences shape services?

Laura Parry1

  • 1St George's University of London, Surrey CR4 1NT, UK lauraparry223@gmail.com.

BMJ Supportive & Palliative Care
|October 7, 2018
PubMed
Summary

Adapting hospice environments for dementia patients improves care. A new dementia-friendly bay at Royal Trinity Hospice led to better patient relaxation and increased caregiver satisfaction, demonstrating the impact of tailored clinical spaces.

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Area of Science:

  • Gerontology
  • Palliative Care
  • Environmental Psychology

Background:

  • Dementia care presents complex challenges, particularly in later stages requiring palliative support.
  • Hospice admission for dementia patients can enhance caregiver satisfaction but may pose risks to patients.
  • Environmental factors in clinical settings can significantly influence the well-being and experience of patients with dementia.

Purpose of the Study:

  • To investigate the impact of environmental design on patient and caregiver experiences in a hospice setting for individuals with dementia.
  • To evaluate the effectiveness of a newly designed dementia-friendly bay in improving patient comfort and reducing agitation.
  • To highlight the importance of adapting clinical environments based on patient feedback and specific needs.

Main Methods:

  • Case study analysis of patient admissions at Royal Trinity Hospice (RTH).
  • Observation of patient (Mr. Smith and Mr. Thomas) responses to different environmental settings.
  • Implementation and evaluation of a dementia-friendly bay incorporating design elements like way-finding aids and familiar furnishings.

Main Results:

  • Initial admission (Mr. Smith) to a modern, dissimilar room led to agitation and early discharge.
  • Post-modification, a dementia-friendly bay resulted in a relaxed admission for another patient (Mr. Thomas).
  • Caregiver feedback indicated increased satisfaction with the adapted environment.

Conclusions:

  • Environmental modifications, such as dementia-friendly design, are crucial for enhancing patient comfort and caregiver satisfaction in hospice care.
  • Hospices must be receptive to feedback and proactively adapt clinical environments to meet the specific needs of patients with dementia.
  • Tailoring the physical space can mitigate negative symptoms and improve the overall quality of palliative care for individuals with cognitive impairment.
Keywords:
dementiaenvironmenthospicepalliative care

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