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Procedural pain in children: a qualitative study of caregiver experiences and information needs
Kassi Shave1,2, Samina Ali2,3, Shannon D Scott3,4
1Alberta Research Centre for Health Evidence (ARCHE), University of Alberta, ECHA 4-472, 11405-87 Avenue, Edmonton, AB, T6G 1C9, Canada.
Insights
Caregivers want direct information from healthcare providers for children undergoing painful emergency department procedures. This study informs a new tool to empower parents in managing pediatric procedural pain and anxiety.
Area of Science:
- Pediatric Emergency Medicine
- Knowledge Translation
- Patient-Centered Care
Background:
- Children frequently experience painful procedures in emergency departments (EDs).
- Evidence-based pain management interventions are underutilized in EDs.
- Caregivers are key advocates for implementing evidence into practice.
Purpose of the Study:
- To gather caregiver insights on managing procedural pain in children within the ED.
- To inform the development of a caregiver-focused knowledge translation (KT) tool.
Main Methods:
- Qualitative descriptive study involving interviews with caregivers of children undergoing IV insertion or venipuncture in a pediatric ED.
- Thematic analysis of interview data.
- Continuous input and guidance from the TRanslating Emergency Knowledge for Kids (TREKK) Parent Advisory Group.
Main Results:
- Caregivers prioritize receiving procedural information directly from healthcare providers.
- Information should be communicated to both the child and caregiver, involving the child in their care.
- Caregivers desire empowerment to ask informed questions and reported negative experiences at non-pediatric centers.
Conclusions:
- Identified core information needs for caregivers of children undergoing IV insertion or venipuncture.
- Results will guide the creation of a KT tool to enhance caregiver participation in pediatric healthcare.
Background:
Children experience multiple painful procedures when being cared for in emergency departments (EDs). Unfortunately, evidence-based interventions to manage such pain and distress are under-utilized across EDs. Caregivers are uniquely positioned and invested to advocate for the adaptation of such evidence into practice. Our objective was to gather information from caregivers of children experiencing procedural pain in the ED to inform the development of a novel, caregiver-focused knowledge translation (KT) tool.
Methods:
The study design was qualitative description. Caregivers of children who underwent intravenous (IV) insertion or venipuncture in the pediatric ED at an urban tertiary care centre were interviewed. Thematic analysis was applied to the data. The TRanslating Emergency Knowledge for Kids (TREKK) Parent Advisory Group continuously informed this study, and provided input on interview guide development and piloting, data collection, analysis of the data, interpretation of the results, and development of next steps.
Results:
Interviews revealed four major themes: 1) source of healthcare information; 2) delivering healthcare information; 3) communication with caregivers; and 4) procedure-related anxiety and long-term effects. Caregivers most valued receiving information directly from their healthcare provider. They also expressed that healthcare providers should direct information about the procedure to their child and identified strategies to involve children in their care. Caregivers wanted to be empowered to ask informed questions of their healthcare providers. Finally, caregivers reported negative experiences with procedures for their children, occurring mainly at non-pediatric centres.
Conclusions:
We have identified core information needs for caregivers whose children are experiencing IV insertion or venipuncture. These results will form the foundation for the development of a KT tool that may empower caregivers to actively participate in their child's healthcare.
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