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Development of a New Patient-reported Outcome Measure for Ear Conditions: The EAR-Q
Anne F Klassen1, Natasha M Longmire1, Neil W Bulstrode2
1Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
Plastic and Reconstructive Surgery. Global Open
|October 17, 2018
Summary
Researchers developed two ear-specific scales to measure outcomes for children and young adults with ear conditions like microtia. The EAR-Q scales assess ear appearance and adverse effects, aiding clinical practice and research.
Area of Science:
- Plastic Surgery
- Patient-Reported Outcomes
- Qualitative Research
Background:
- Patient-reported outcome measures (PROMs) are crucial for enhancing healthcare services and patient results.
- Ear conditions like microtia and prominent ears significantly impact quality of life.
Purpose of the Study:
- To develop and describe two ear-specific scales for measuring outcomes in pediatric and young adult populations with ear conditions.
- To capture patient perspectives on appearance and adverse effects related to ear conditions.
Main Methods:
- Employed an interpretive description qualitative approach utilizing semi-structured interviews.
- Conducted qualitative and cognitive interviews with 25 participants (aged 8-21) across four countries.
- Incorporated expert input via an online survey for scale refinement.
Main Results:
- Developed an 18-item ear appearance scale and a 12-item adverse effects scale.
- Scales were refined through iterative analysis of qualitative data, cognitive interviews, and expert feedback.
- Key areas for ear appearance included size, shape, and perception in photographs.
Conclusions:
- The newly developed scales, collectively termed EAR-Q, are undergoing international field-testing.
- Anticipated use in clinical practice and research to evaluate outcomes from the patient's viewpoint.
- The EAR-Q aims to provide valuable insights into patient experiences following ear surgery.
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