Perspective from Clinical Research: Ethical Issues in Alzheimer's Disease Research
1Jacobo Mintzer, M.D., M.B.A., is the Executive Director of the Roper St. Francis Research and Innovation Center (formerly the Clinical Biotechnology Research Institute) and the Chief Research and Innovation Officer of Roper St. Francis Healthcare System. He earned his Doctorate of Medicine from the Buenos Aires University in 1978 and his M.B.A. from the Citadel University in 2009. He currently conducts Clinical Alzheimer's disease research at Roper St. Francis and the Ralph H. Johnson VA Medical Center.
Abstract:
This paper attempts to bring to the attention of the readers a concept that broadens ethical considerations for Alzheimer's disease research. We propose we move away from the ethical paradigm that focuses on avoidance of coercion for participation in studies as well as privacy and safety to a more inclusive paradigm that will not only include the principles outlined above but will also guarantee access to new treatments for individuals that participate in research and other members of society. Specifically, if the research being performed results in a new treatment for Alzheimer's disease, would the individuals participating in the research and other members of their community have access to and benefit from these treatments, given the availability of financial and other resources in the society that will allow for the implementation of these treatments. This paper will propose a model that will facilitate the achievement of these broader ethical considerations.
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