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Principles for provision of integrated complex care for children across the acute-community interface in Europe

Maria Brenner1, Miriam P O'Shea1, Rebecca McHugh1

  • 1School of Nursing & Midwifery, Trinity College Dublin, University of Dublin, Dublin, Ireland.

The Lancet. Child & Adolescent Health
|October 20, 2018
PubMed

Insights

This viewpoint introduces core principles and standards for personalized care for European children with complex care needs. These aim to improve service integration, policy, and assessment for better child and family experiences.

Area of Science:

  • Pediatrics
  • Healthcare Management
  • Child Health Services

Background:

  • Children with complex care needs require integrated and personalized healthcare services.
  • Existing service delivery models often face challenges at various care interfaces.
  • A European-wide framework for effective care is needed.

Purpose of the Study:

  • To develop the first core principles and standards for effective, personalized care for children with complex care needs in Europe.
  • To establish a benchmark for assessing and improving services for this vulnerable population.
  • To inform policy and future service development.

Main Methods:

  • Analysis of data gathered on care integration across acute-community, referral-discharge, and social care interfaces.
  • Inclusion of nursing preparedness and child/family experiences in the data analysis.
  • Development of core principles and standards based on a child-centric approach.

Main Results:

  • Three main principles were identified: access to care, co-creation of care, and effective integrated governance.
  • These principles are underpinned by a child-centric approach.
  • A suite of indicators for assessing service developments was proposed.

Conclusions:

  • The developed principles and standards provide a framework for benchmarking and improving care for children with complex needs.
  • This initiative aims to influence policy and enhance service delivery across Europe.
  • A child-centric, integrated approach is crucial for effective complex care management.

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