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National Standards for Public Involvement in Research: missing the forest for the trees.

Matthew S McCoy1, Karin Rolanda Jongsma2, Phoebe Friesen3

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National Standards for Public Involvement in Research offer practical advice but lack justification for public engagement. Clearer goals are needed for effective implementation in biomedical research.

Keywords:
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Area of Science:

  • Biomedical Research
  • Public Engagement in Science

Background:

  • Funding bodies increasingly mandate public involvement in research.
  • Lack of clear definitions for successful public involvement exists.
  • The UK National Standards for Public Involvement in Research were developed to guide this process.

Purpose of the Study:

  • To critically assess the National Standards for Public Involvement in Research.
  • To identify limitations in the Standards regarding the rationale for public involvement.
  • To provide guidance on the foundational aspects of public involvement in research.

Main Methods:

  • Analysis of the National Standards for Public Involvement in Research.
  • Evaluation of the Standards' guidance on practical challenges versus foundational principles.
  • Assessment of the potential for misapplication of the Standards.

Main Results:

  • The Standards provide useful practical suggestions but omit fundamental questions about the 'when,' 'why,' and 'with whom' of public involvement.
  • Recommendations may be fragmented without clear underlying goals.
  • Potential for misapplication by researchers exists.

Conclusions:

  • The National Standards for Public Involvement in Research require elaboration on their underlying goals and rationales.
  • Future recommendations for public involvement must be grounded in a clear understanding of its purpose.
  • Effective implementation necessitates addressing the foundational context of public involvement.