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Participation of Children with Spina Bifida: A Scoping Review Using the International Classification of Functioning,

Indrė Bakanienė1, Laura Žiukienė2, Vaida Vasiliauskienė3

  • 1Department of Children's Rehabilitation, Lithuanian University of Health Sciences, LT-47179 Kaunas, Lithuania. bakind@gmail.com.

Medicina (Kaunas, Lithuania)
|October 23, 2018
PubMed

Insights

Children with spina bifida (SB) face significant participation restrictions, particularly in leisure, school, and community settings. Contextual factors heavily influence their engagement, highlighting a need for further research into facilitating interventions.

Area of Science:

  • Pediatric Rehabilitation
  • Child Development
  • Disability Studies

Background:

  • Child participation is a fundamental right, irrespective of health status.
  • Assessing and supporting participation for children with spina bifida (SB) poses challenges for healthcare professionals.
  • Limited understanding exists regarding the participation patterns and influencing factors for children with SB.

Purpose of the Study:

  • To systematically review and synthesize existing research on the participation of children with spina bifida.
  • To identify key occupational domains and contextual factors affecting participation in this population.
  • To highlight gaps in the current literature concerning child participation in SB.

Main Methods:

  • A scoping review framework (Arksey & O'Malley) was employed.
  • A comprehensive literature search was conducted across CINAHL, Medline, PsychINFO, and ERIC databases.
  • Ten studies meeting inclusion criteria were selected and analyzed for synthesis.

Main Results:

  • The majority of included studies focused on social participation or physical activity, with limited research on school participation.
  • Children with SB demonstrated greater participation restrictions compared to typically developing peers or children with other chronic conditions.
  • Participation was predominantly influenced by contextual factors, with insufficient validation of pathology-participation relationships.

Conclusions:

  • There is a paucity of research specifically addressing the participation of children with spina bifida.
  • Future research should prioritize the investigation of contextual factors that facilitate or impede participation.
  • Intervention studies focusing on enhancing participation for children with SB are warranted.

Keywords:
childrenenvironmentinvolvementparticipationspina bifida

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