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Reflection on the assessment and care of a child with osteogenesis imperfecta

Rachel McDowell1, Alice McKendry1, Gabrielle Smyth2

  • 1Queen's University Belfast, Northern Ireland.

Nursing Children and Young People
|October 31, 2018
PubMed

Insights

This article discusses Osteogenesis Imperfecta (OI), a brittle bone disorder, and shares nursing students' reflective experiences caring for a child with OI. It highlights the importance of reflective practice in pediatric nursing for this rare condition.

Area of Science:

  • Pediatric Nursing
  • Genetics
  • Rare Diseases

Background:

  • Osteogenesis Imperfecta (OI) is a rare genetic disorder characterized by brittle bones prone to fracture.
  • Limited evidence and understanding exist regarding optimal nursing care for children with OI.
  • Reflective practice is crucial for nursing training, skill development, and evidence-based practice.

Purpose of the Study:

  • To share the reflective experiences of pediatric nursing students caring for a child with OI.
  • To explore the assessment and nursing care specific to children diagnosed with OI.
  • To contribute to the understanding of nursing practice for OI through personal reflection.

Main Methods:

  • Case study of a child with Osteogenesis Imperfecta.
  • Reflective practice by second-year children's nursing students.
  • Literature review on nursing care for OI (implied).

Main Results:

  • The article presents a personal reflection on the clinical practice of nursing a child with OI.
  • It highlights the practical challenges and learning experiences in managing OI.
  • The authors emphasize the value of reflection in addressing knowledge gaps in rare disease care.

Conclusions:

  • Reflective practice enhances nursing skills and knowledge, particularly for rare conditions like OI.
  • Further exploration of evidence-based nursing interventions for OI is needed.
  • Student experiences offer valuable insights into the care of children with genetic bone disorders.

Keywords:
bone healthchild healthfracturesgenetic disordersorthopaedics

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