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Parental And Clinician Views Of Consent In Neonatal Research.
N O'Shea1,2, K Doran3, C A Ryan1,2
1Irish Centre for Fetal and Neonatal Translational Research (INFANT), University College Cork, Cork, Ireland.
Irish Medical Journal
|October 31, 2018
Summary
Parents generally support neonatal research, with key motivations including helping future babies and perceived direct healthcare benefits. Clinicians prefer antenatal information, and most agree on the importance of Good Clinical Practice training.
Area of Science:
- Neonatal research ethics
- Clinical trial informed consent
Background:
- Informed consent is crucial in neonatal research.
- Understanding parental and clinician perspectives is vital for ethical research practices.
Purpose of the Study:
- To investigate parental and clinician views on the informed consent process in neonatal research.
- To identify factors influencing parental consent and clinician preferences for information delivery.
Main Methods:
- A questionnaire-based study was conducted.
- Two distinct questionnaires were developed and administered to parents and clinicians over a four-month period.
Main Results:
- Most parents surveyed had consented their baby to a research study, citing altruism and perceived benefit as primary reasons.
- Clinicians favored antenatal information delivery, with a notable portion open to waivers of consent in specific neonatal research scenarios.
- A significant majority of clinicians emphasized the importance of Good Clinical Practice (GCP) training.
Conclusions:
- Parents demonstrate general support for neonatal research.
- Effective informed consent processes in neonatal research require attention to parental motivations and clinician training in Good Clinical Practice.
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