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Engaging knowledge users in development of the CONSORT-Equity 2017 reporting guideline: a qualitative study using
Janet Jull1,2, Mark Petticrew3, Elizabeth Kristjansson4
11School of Rehabilitation Therapy, Queen's University, Kingston, Ontario Canada.
Research Involvement and Engagement
|November 1, 2018
Summary
Key informant interviews informed the development of the CONsolidated Standards Of Reporting Trials Statement for health equity (CONSORT-Equity 2017). This study highlights the value of knowledge user input for improving health equity reporting in randomized trials.
Area of Science:
- Health Services Research
- Clinical Trials Methodology
- Health Equity Studies
Background:
- Randomized controlled trials (RCTs) are crucial for assessing healthcare intervention equity impacts.
- Decision-makers require evidence on equity to ensure optimal patient care.
- The CONsolidated Standards Of Reporting Trials Statement for health equity (CONSORT-Equity 2017) was developed to improve reporting.
Purpose of the Study:
- To integrate knowledge user expertise into the development of CONSORT-Equity 2017.
- To understand perspectives on reporting health equity in randomized trials.
- To enhance the reporting of intervention effects on health equity.
Main Methods:
- A qualitative study employing framework analysis.
- In-depth, semi-structured interviews with key informants involved in the research lifecycle.
- Purposive sampling of participants including patients, researchers, funders, and decision-makers.
Main Results:
- Thirteen key informants, including three patients, participated.
- Seven emergent themes: trial differentiation, equity prompts, ethics, research strategies, reporting clarity, sampling/analysis implications, and broader trial impact.
- Insights guided the extension of 16 CONSORT-Equity 2017 items.
Conclusions:
- Key informant interviews yielded novel concepts for CONSORT-Equity 2017 development.
- Emphasizes the importance of incorporating knowledge user expertise in guideline creation.
- Recommends using key informant interviews for robust guideline development.
Keywords:
CONSORTGlobal healthGuidelinesHealth equityIntegrated knowledge translationInterviewsPatient-involvementPublic-involvementRandomized trialsMore Related Videos
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