Computerized tracking for newborn screening and follow-up: a review

In the third decade of newborn screening for phenylketonuria (PKU) and other disorders computers are being used increasingly for both the laboratory and the follow-up aspects of screening programs. In 1984 slightly less than 40% of the state programs had automated follow-up. Lack of funding is probably the major inhibitor of more widespread use of computers in tracking newborns through the newborn screening process. It is suggested that federal funds be made available to ensure wider distribution of currently used tracking systems and development of methods for tracking newborns from birth through follow-up.