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Published on: July 18, 2014
Psychosocial Outcomes of Children and Adolescents With Severe Congenital Heart Defect: A Systematic Review and
Assil Abda1, Marie-Eve Bolduc2,3, Argerie Tsimicalis4
1Faculty of Medicine, McGill University.
Insights
Children and adolescents with severe congenital heart defects (CHD) often experience behavioral problems and social cognition difficulties. Regular psychosocial assessments are recommended for their clinical follow-up.
Area of Science:
- Pediatric Cardiology
- Developmental Psychology
- Clinical Psychology
Background:
- Growing interest in psychosocial outcomes for children and adolescents with congenital heart defects (CHD).
- Severe CHD can impact psychological development and social functioning.
- Need for synthesized evidence on psychosocial outcomes in this population.
Purpose of the Study:
- To systematically review and synthesize current literature on psychosocial outcomes.
- To appraise the prevalence and nature of psychosocial difficulties in children and adolescents with severe CHD.
- To provide evidence for clinical follow-up strategies.
Main Methods:
- Systematic literature search for studies on psychosocial outcomes in children and adolescents with severe CHD.
- Meta-analyses to calculate prevalence and effect sizes (standardized mean differences).
- Descriptive statistics for results not included in meta-analyses.
Main Results:
- 25% of children and adolescents with CHD exhibited behavioral problems.
- Individuals with CHD showed significantly more problematic behavior compared to healthy peers (g=0.71).
- Significant difficulties were observed in inferring others' mental states (g=0.72), but not in emotion recognition or self-esteem.
Conclusions:
- Evidence supports the presence of psychosocial difficulties in children and adolescents with severe CHD.
- Systematic assessment of behavior and social cognition is warranted during clinical follow-up.
- Findings inform targeted interventions and support for affected youth.
Objective:
Over the past 20 years, there has been a growing interest in the psychosocial outcomes of children and adolescents born with a congenital heart defect (CHD). This systematic review and meta-analysis aims to appraise and synthesize current literature on the psychosocial outcomes of children and adolescents with severe CHD.
Methods:
A search of studies examining psychosocial outcomes in children and adolescents with severe CHD was performed. Meta-analyses were used to calculate the prevalence of psychosocial impairments and the standardized mean differences between cases and controls. Results that were not included in the meta-analysis were collated using descriptive statistics.
Results:
A total of 16 studies were included in this review, and results were summarized according to three domains: behavior, social cognition, and self-esteem. Results from a meta-analysis identified that 25% of children and adolescents with CHD presented behavioral problems. Children and adolescents with CHD had more problematic behavior than healthy peers (standardized mean difference; g = 0.71). Young people with CHD had significantly more difficulties inferring on the mental states of others (standardized mean difference; g = 0.72). In contrast, identifying the emotions of others and self-esteem was not statistically different from healthy controls.
Conclusion:
This review and meta-analysis provides evidence to support the presence of psychosocial difficulties in children and adolescents born with a severe CHD giving grounds for the systematic assessment of behavior and social cognition during their clinical follow-up.
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