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Electronic Collection of Multilingual Patient-Reported Outcomes across Europe.

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A new multilingual electronic patient-reported outcome (ePRO) system, MoPat2, was developed for international clinical studies. High user satisfaction was reported by clinicians and patients, indicating its effectiveness in collecting multilingual PROs.

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Area of Science:

  • * Health Informatics
  • * Clinical Research Technology
  • * Patient-Reported Outcomes

Background:

  • * Patient-reported outcomes (PROs) are crucial for diagnosis and treatment, with validated translations aiding international patient care.
  • * Existing electronic PRO (ePRO) systems are often study-specific, lacking scalability, interoperability, and multilingual support.
  • * Mobile devices offer potential for PRO collection but face limitations in current system designs.

Purpose of the Study:

  • * To develop a multicenter, multilingual, and interoperable electronic PRO (ePRO) system.
  • * To evaluate the user satisfaction of this novel ePRO system in an international clinical setting.
  • * To assess the system's performance across different demographics and languages.

Main Methods:

  • * Development of the "MoPat2" ePRO system using Java 8 and jQuery Mobile 1.4.5.
  • * Evaluation within the European PruNet dermatology project involving 26 clinicians and 468 patients across 8 European centers.
  • * User satisfaction assessment via questionnaires, with results analyzed by age, gender, and language.

Main Results:

  • * MoPat2 successfully implemented multilingual capabilities for surveys and data management.
  • * Clinicians rated the system favorably with an average score of 2.0 (good) on a 5-point Likert scale.
  • * High patient acceptance: 93.9% found the system easy to use, and 88.9% would use it again; older patients were less inclined to reuse the system.

Conclusions:

  • * MoPat2 is the first ePRO system used for multilingual PRO collection in an international, multicenter study.
  • * The system demonstrated high user satisfaction among both clinicians and patients in a European dermatology context.
  • * Future development will focus on enhanced features, including remote patient follow-up capabilities.