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Information sharing across generations and environments (InfoSAGE): study design and methodology protocol.

Yuri Quintana1,2, Bradley Crotty3,4, Darren Fahy5

  • 1Division of Clinical Informatics, Beth Israel Deaconess Medical Center, 330 Brookline Avenue, Boston, MA, 02115, USA. yquintan@bidmc.harvard.edu.

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This study explores an online platform for older adults and their caregivers to share health information. It aims to improve communication and address the growing needs of an aging population.

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Area of Science:

  • Gerontology
  • Health Informatics
  • Human-Computer Interaction

Background:

  • Increasing longevity leads to greater healthcare demands on providers and family caregivers.
  • The burden of care often falls on a single primary caregiver, increasing stress and negatively impacting health.
  • Limited research exists on the preferences of adults over 75 for online health information sharing with family.

Purpose of the Study:

  • To assess a novel, internet-based, family-centric communication and collaboration platform.
  • To address the health information needs of elders and their informal caregivers in a community setting.
  • To understand preferences for online health information exchange among older adults and their families.

Main Methods:

  • An internet-based, open prospective cohort study enrolling dyads of adults over 75 and informal caregivers.
  • Participants use the InfoSAGE online platform, with online consent and data collection from any location.
  • A mixed-methods approach using qualitative survey data and website usage analytics over two years.

Main Results:

  • Longitudinal analysis of usage and survey data will examine patterns in family communication and health information seeking.
  • Data will inform design recommendations for the platform, considering diverse users, especially older adults.
  • Focus on potential physical limitations of older adult users in platform design.

Conclusions:

  • The study will provide insights into family communication dynamics and health information seeking behaviors in aging adults.
  • Findings will guide the development of user-centered online platforms for elder care and family support.
  • Recommendations will enhance the usability and effectiveness of digital health tools for older populations.