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Feasibility and Perceptions of PICU Diaries
Elizabeth A Herrup1, Beth Wieczorek1, Sapna R Kudchadkar
1Department of Anesthesiology and Critical Care Medicine, Charlotte R. Bloomberg Children's Center, Johns Hopkins University School of Medicine, Baltimore, MD.
Summary
Pediatric critical care (PICU) diaries are feasible and viewed positively by families. Further research is needed to confirm if these diaries improve patient and family psychological outcomes post-PICU.
Area of Science:
- Pediatric critical care medicine
- Family-centered care
- Patient experience research
Background:
- Implementing patient diaries in intensive care units (ICUs) can support patients and families.
- The feasibility and family perceptions of pediatric ICU (PICU) diaries are not well-established.
Purpose of the Study:
- To assess the feasibility of using diaries in a pediatric critical care setting.
- To understand family members' perceptions of PICU diaries after discharge.
Main Methods:
- An observational pilot study was conducted in a US tertiary academic hospital's PICU.
- Twenty critically ill children's families participated, with diaries used during their PICU stay.
- Parental perceptions were assessed via surveys sent two weeks post-PICU discharge.
Main Results:
- The study enrolled 20 families between May 2017 and March 2018.
- Nurses predominantly authored diary entries (63%), with 453 entries recorded over 433 patient days.
- Most parents enjoyed contributing to the diary (7/8), reviewed it post-discharge (9/12), and found it beneficial (all respondents).
Conclusions:
- PICU diaries are feasible and perceived as beneficial by families of critically ill children.
- Further research is required to determine if PICU diaries objectively improve psychologic outcomes for patients and families.
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