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Stakeholder involvement in systematic reviews: a scoping review.
Alex Pollock1, Pauline Campbell2, Caroline Struthers3
1Nursing Midwifery and Allied Health Professions (NMAHP) Research Unit, Glasgow Caledonian University, Cowcaddens Road, Glasgow, G4 0BA, UK. alex.pollock@gcu.ac.uk.
Systematic Reviews
|November 27, 2018
Summary
Stakeholder involvement in systematic reviews is recognized as good practice, but evidence on best methods is limited. This review found many papers report involvement, but often with poor descriptions, highlighting a need for better guidance.
Area of Science:
- Health Services Research
- Evidence Synthesis
- Patient and Public Involvement
Background:
- Growing recognition of the importance of involving diverse stakeholders (patients, public, professionals) in systematic reviews.
- Limited empirical evidence and guidance on effective methods for stakeholder engagement in systematic reviews.
Purpose of the Study:
- To systematically review and document the evidence base for stakeholder involvement in systematic reviews.
- To describe how stakeholders have been involved in systematic reviews based on the available evidence.
Main Methods:
- Conducted a scoping review following a published protocol, searching multiple electronic databases from 2010-2016.
- Screened over 1000 abstracts and performed data extraction on 291 included papers, with additional extraction for 32 papers offering comprehensive descriptions.
- Included three stakeholder representatives as co-authors throughout the review process.
Main Results:
- 291 papers reported stakeholder involvement, with 30% including patients/carers; most common countries were USA (32%) and UK (26%).
- Only 10% (32 reviews) provided comprehensive descriptions of involvement methods; common methods included personal invitations (69%) and face-to-face meetings (81%).
- Reporting quality was generally poor, with limited details on ethical approval (10/32) and expense reimbursement (8/32).
Conclusions:
- While numerous systematic reviews report stakeholder involvement, the quality of reporting on methods is often inadequate.
- Examples from comprehensively described reviews offer valuable insights for planning future stakeholder engagement.
- Developed online learning resources based on findings to guide effective stakeholder involvement in systematic reviews.
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