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[Participation in self-help groups: impact on self-management and knowledge].

Stefan Nickel1, Marius Haack2, Olaf von dem Knesebeck3

  • 1Institut für Medizinische Soziologie, Universitätsklinikum Hamburg-Eppendorf, Martinistraße 52, 20246, Hamburg, Deutschland. nickel@uke.de.

Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz
|November 28, 2018
PubMed
Summary

Self-help groups (SHGs) offer patients and relatives empowerment and self-management benefits. This study found SHG members showed improved outcomes in key health areas, supporting their positive impact.

Keywords:
Chronic diseaseHealth literacySHILD studySelf-help groupSelf-management

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Area of Science:

  • Health Services Research
  • Patient Empowerment
  • Self-Management Support

Background:

  • Self-help groups (SHGs) are integral to patient involvement and healthcare systems.
  • Limited systematic data exists on the specific impact of SHGs for patients and relatives.
  • The study addresses a gap in understanding the quantitative effects of collective self-help.

Purpose of the Study:

  • To compare outcomes between members and non-members of self-help groups.
  • To describe the effects of self-help on patient empowerment and self-management.
  • To contribute findings to the 'Health-related Collective Self-Help in Germany' project.

Main Methods:

  • Cross-sectional study involving 2870 participants across five therapeutic areas.
  • Participants included patients with diabetes mellitus type 2, prostate cancer, multiple sclerosis, tinnitus, and relatives of dementia patients.
  • Data collected via multidimensional questionnaires (paper-and-pencil or online); 49% were active SHG members.

Main Results:

  • SHG members demonstrated statistically significant, albeit small, advantages in five of seven Health Education Impact Questionnaire (heiQ) scales.
  • SHG members achieved higher scores in specific knowledge tests.
  • Key benefits identified by members include social inclusion, psychosocial relief, disease coping, and enhanced disease management insights.

Conclusions:

  • While personal characteristics may influence SHG participation, results suggest a positive impact of SHG involvement on patient outcomes.
  • Statistical control for confounders supports the hypothesis that SHG participation positively influences outcomes.
  • Findings indicate that self-help groups contribute meaningfully to patient empowerment and self-management.