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Is there a need for an emergency card in hypoparathyroidism?

M C Astor1,2, W Zhu1,3, S Björnsdottir4

  • 1Department of Medicine, Haukeland University Hospital, Bergen, Norway.

Journal of Internal Medicine
|November 29, 2018
PubMed

Insights

Patients with hypoparathyroidism need an emergency card due to frequent hospitalizations for hypocalcemia and hypercalcemia. The majority of surveyed patients found such a card highly useful for managing acute situations.

Area of Science:

  • Endocrinology
  • Patient Safety
  • Public Health

Background:

  • Patients with hypoparathyroidism face risks of hypocalcemic and hypercalcemic crises.
  • Inadequate response from health professionals during acute situations is a reported concern.
  • The prevalence and management of severe hypo- and hypercalcemia in hypoparathyroidism remain unclear.

Purpose of the Study:

  • To determine the need for a medical emergency card for individuals with primary hypoparathyroidism.
  • To assess patient perspectives on the utility of an emergency card for acute hypoparathyroidism management.

Main Methods:

  • A postal survey was conducted among 455 patients with chronic hypoparathyroidism in Norway and Sweden.
  • The survey collected data on hospitalization history for hypo- and hypercalcemia and perceived need for an emergency card.

Main Results:

  • A 74% response rate (336/455) was achieved, with a majority of respondents being women (79%).
  • 44% of patients had been hospitalized for hypocalcemia, and 16% for hypercalcemia.
  • 87% of patients believed an emergency card would be highly needed or useful, with higher perceived need among those previously hospitalized.

Conclusions:

  • The majority of patients with hypoparathyroidism consider an emergency card essential for acute care.
  • Acute hypocalcemia hospitalizations (44%) are more prevalent than hypercalcemia hospitalizations (16%).
  • An emergency card will be piloted in three European countries to evaluate its practical utility.
Abstract

Keywords:
emergency cardhypoparathyroidism

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