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Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance
1Center for Biomedical Ethics and Law, Department of Public Health and Primary Care, University of Leuven, Leuven, Belgium.
Blockchain platforms offer solutions for genomic data sharing challenges. They enable distributed stewardship, access control, and enforcement of data agreements and ownership.
Area of Science:
- Genomics
- Computer Science
- Bioinformatics
Background:
- Genomic data sharing faces technical and governance hurdles.
- Existing platforms struggle with secure and equitable data access.
- Need for robust solutions to manage genomic data stewardship and ownership.
Purpose of the Study:
- To explore blockchain-based platforms for genomic data sharing.
- To highlight the potential of blockchain in addressing data stewardship and access control.
- To examine the enforcement mechanisms for data access agreements and ownership.
Main Methods:
- Review of current blockchain platform capabilities for data sharing.
- Analysis of technical and governance features relevant to genomic data.
- Assessment of participatory access control and data stewardship models.
Main Results:
- Blockchain platforms offer distributed data stewardship.
- Participatory access control is a key feature.
- Effective enforcement of data access agreements and ownership is possible.
Conclusions:
- Blockchain technology presents a promising framework for secure and transparent genomic data sharing.
- These platforms can enhance data governance and empower data owners.
- Future research should focus on practical implementation and scalability.
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