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Developmental coordination disorder: the impact on the family
Mary Ann Megan Cleaton1, Paula Kate Lorgelly2, Amanda Kirby3
1Dyscovery Centre, University of South Wales, Innovation House, William Price Business Park, Treforest, Pontypridd, UK.
Summary
Developmental Coordination Disorder (DCD) significantly impacts family quality of life (QOL), affecting parental mental health and social well-being. Support from professionals is crucial to mitigate negative consequences for children with DCD and their families.
Area of Science:
- Neurodevelopmental Disorders
- Pediatric Health
- Family Studies
Background:
- Developmental Coordination Disorder (DCD) affects 2-6% of school-aged children, impacting their quality of life (QOL).
- Previous research has not extensively evaluated the QOL impact of childhood DCD on UK families.
- Understanding family QOL is crucial for comprehensive DCD support.
Purpose of the Study:
- To assess the parental and family quality of life (QOL) in UK families with a child diagnosed with Developmental Coordination Disorder (DCD).
- To identify specific domains of family QOL affected by childhood DCD.
Main Methods:
- A mixed-methods study utilizing an online questionnaire.
- Inclusion of the Family QOL Scale and the 12-Item Short Form Health Survey.
- Targeting UK families with children aged 6-18 years diagnosed with DCD.
Main Results:
- Family QOL, particularly emotional and disability support domains, was negatively impacted by DCD.
- Lack of professional support (medical, educational) emerged as a significant stressor for families.
- Parental mental health, work-life, social life, and siblings' well-being were adversely affected.
Conclusions:
- Childhood DCD has a substantial effect on the overall family unit.
- Recognition by healthcare and educational professionals is essential for appropriate service targeting.
- Addressing family QOL impacts can prevent wider social and economic consequences associated with DCD.
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