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Developmental coordination disorder: the impact on the family

Mary Ann Megan Cleaton1, Paula Kate Lorgelly2, Amanda Kirby3

  • 1Dyscovery Centre, University of South Wales, Innovation House, William Price Business Park, Treforest, Pontypridd, UK.

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
|December 12, 2018
PubMed

Insights

Developmental Coordination Disorder (DCD) significantly impacts family quality of life (QOL), affecting parental mental health and social well-being. Support from professionals is crucial to mitigate negative consequences for children with DCD and their families.

Area of Science:

  • Neurodevelopmental Disorders
  • Pediatric Health
  • Family Studies

Background:

  • Developmental Coordination Disorder (DCD) affects 2-6% of school-aged children, impacting their quality of life (QOL).
  • Previous research has not extensively evaluated the QOL impact of childhood DCD on UK families.
  • Understanding family QOL is crucial for comprehensive DCD support.

Purpose of the Study:

  • To assess the parental and family quality of life (QOL) in UK families with a child diagnosed with Developmental Coordination Disorder (DCD).
  • To identify specific domains of family QOL affected by childhood DCD.

Main Methods:

  • A mixed-methods study utilizing an online questionnaire.
  • Inclusion of the Family QOL Scale and the 12-Item Short Form Health Survey.
  • Targeting UK families with children aged 6-18 years diagnosed with DCD.

Main Results:

  • Family QOL, particularly emotional and disability support domains, was negatively impacted by DCD.
  • Lack of professional support (medical, educational) emerged as a significant stressor for families.
  • Parental mental health, work-life, social life, and siblings' well-being were adversely affected.

Conclusions:

  • Childhood DCD has a substantial effect on the overall family unit.
  • Recognition by healthcare and educational professionals is essential for appropriate service targeting.
  • Addressing family QOL impacts can prevent wider social and economic consequences associated with DCD.
Abstract

Keywords:
Developmental coordination disorderFamilyParentQuality of lifeSiblingWork life

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