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Psychosocial Issues in Children With Thalassemia: From Identification to a Model for Management in a Developing

Vijaya Raman1, Anand Prakash2, Fulton D'Souza2

  • 1Departments of Psychiatry.

Journal of Pediatric Hematology/Oncology
|December 14, 2018
PubMed

Insights

Children with beta thalassemia major experience significant psychosocial problems. Screening tools effectively identify these issues in both children and their caregivers, enabling timely counseling and support.

Area of Science:

  • Pediatric Psychology
  • Hematology
  • Mental Health

Background:

  • Children with beta thalassemia major (TM) face significant psychosocial challenges.
  • Caregivers of children with TM also experience considerable psychosocial distress.
  • Early detection of these issues is crucial for effective intervention.

Purpose of the Study:

  • To screen for psychosocial problems in children with TM and their caregivers.
  • To evaluate the utility of screening tools in identifying individuals needing counseling.
  • To inform management strategies for pediatric chronic illness.

Main Methods:

  • Administered the Pediatric Symptom Checklist (PSC-17) and Strengths and Difficulties Questionnaire (SDQ) to 30 children with TM.
  • Used age- and sex-matched controls for comparison.
  • Assessed parents using the General Health Questionnaire (GHQ).

Main Results:

  • Children with TM showed significantly higher scores on PSC-17 and SDQ compared to controls.
  • Parents of children with TM reported higher distress levels on the GHQ.
  • Screening tools identified increased psychosocial morbidity in both children with TM and their caregivers.

Conclusions:

  • Psychosocial morbidity is prevalent in children with TM and their caregivers.
  • Screening tools are effective in detecting individuals requiring formal counseling.
  • Pediatricians should collaborate with mental health professionals for comprehensive management.
Abstract

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