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Summer Camps for Children with Sickle Cell Disease

Lauren Narcisse1, Edward A Walton2, Lewis L Hsu3

  • 1College of Medicine, University of Illinois at Chicago, Chicago, IL.

Ochsner Journal
|December 19, 2018
PubMed

Insights

Summer camps offer unique benefits for children with sickle cell disease (SCD), promoting self-care and peer support. These specialized camps provide a safe environment for managing SCD and transitioning to adult healthcare.

Area of Science:

  • Pediatric Hematology
  • Community Health Programs
  • Recreational Therapy

Background:

  • Children with sickle cell disease (SCD) experience unique challenges not typically accommodated by standard summer camps.
  • Lack of specialized staff training at traditional camps poses health risks for children with chronic conditions like SCD.

Purpose of the Study:

  • To identify unique characteristics of summer camps for children with SCD.
  • To gather recommendations and lessons learned for managing SCD in a camp setting.

Main Methods:

  • Literature search of PubMed and CINAHL databases.
  • Keywords used: summer camp, camp, sickle cell disease, anemia.
  • Identification of empirical accommodations and extrapolated care recommendations.

Main Results:

  • Limited published data exists on SCD camps.
  • Camps facilitate peer learning, positive role modeling, and personal growth in a supportive, stigma-free environment.
  • Camp experiences aid in self-care education and the transition to adult healthcare.

Conclusions:

  • Camps for children with SCD enable effective care coordination and dissemination of best practices.
  • Community organizations should recruit young adults with SCD as counselors.
  • Stakeholders must collaborate to ensure children with SCD benefit from summer camp experiences.
Abstract

Keywords:
Anemia–sickle cellcampingdisabled childrenminority healthpatient-centered carerecreation therapy

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