The Implementation Effectiveness of a Freely Available Pediatric Cancer Pain Assessment App: A Pilot Implementation
Perri R Tutelman1,2, Christine T Chambers1,2, Jennifer N Stinson3,4
1Dalhousie University, Halifax, NS, Canada.
JMIR Cancer
|December 23, 2018
Summary
Pain Squad, an app for pediatric cancer pain assessment, showed low user engagement and adherence in a real-world setting. Despite positive feedback from a small group, uptake challenges hinder its widespread clinical implementation.
Area of Science:
- Digital Health
- Pediatric Oncology
- Implementation Science
Background:
- Pain Squad is an evidence-based iOS application designed for pediatric cancer pain assessment.
- Evaluating the real-world clinical utility of validated research technologies is crucial for optimizing their use.
Purpose of the Study:
- To assess the implementation effectiveness of the Pain Squad application in a naturalistic setting.
Main Methods:
- 149 children with cancer (aged 8-18) were invited; participants used Pain Squad on personal devices for 1 week.
- Data collection involved app-based pain reports, email submission, and an online user experience survey.
- Key implementation outcomes included acceptability, appropriateness, cost, feasibility, fidelity, penetration, and sustainability.
Main Results:
- Only 16 children participated, with 37.5% returning pain reports.
- Adherence to pain assessments averaged 62.1%.
- The few participants who completed the study found the app feasible and acceptable, indicating potential for sustained use and recommendation.
Conclusions:
- User uptake, engagement, and adherence presented significant barriers to Pain Squad's implementation in a real-world setting.
- While well-received by a small cohort, challenges remain for widespread adoption.
- Implementation studies are vital for identifying opportunities to enhance the uptake of evidence-based digital health technologies.
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